[NYTimes] Medical Myopia

Russians Eagerly Participate in Medical Experiments, Despite Risks

“These studies are also done more cheaply and swiftly in Russia than the West, as volunteers, perhaps tapping Russians’ deep sense of fatalism, are surprisingly forthcoming.

“Why not? I take risks every day,” Mr. Maksimov said, noting that he recently flew on a Russian-made airplane.

Patients, as was the case with Ms. Malinina, are eager to join trials because often it is the only way to receive modern medical care.

But there have been strange results. In 2007, an F.D.A. official wrote that the agency approved Eli Lilly’s top-selling antipsychotic drug Zyprexa for use by adolescents based on the results of a Russian test, even though trials in the United States showed the drug had no effect. Why tests differed in Russia and the United States was never explained. Doctors now routinely prescribe the drug for American adolescents.

http://www.nytimes.com/2012/09/27/business/global/russians-eagerly-participating-in-medical-experiments-despite-risks.html

Quote of the Day: Zack Galafinaiawiakwisian

“I would start a revolution, but I just bought a hammock.”-Zach Galifianakis.

Also, did you catch this? I just saw it:

A Wikileaks post published on The Nation shows that the Obama Administration fought to keep Haitian wages at 31 cents an hour. It started when Haiti passed a law two years ago raising its minimum wage to 61 cents an hour. According to an embassy cable: This infuriated American corporations like Hanes and Levi Strauss that pay Haitians slave wages to sew their clothes. They said they would only fork over a seven-cent-an-hour increase, and they got the State Department involved. The U.S. ambassador put pressure on Haiti’s president, who duly carved out a $3 a day minimum wage for textile companies (the U.S. minimum wage, which itself is very low, works out to $58 a day).

Haiti has about 25,000 garment workers. If you paid each of them $2 a day more, it would cost their employers $50,000 per working day, or about $12.5 million a year … As of last year Hanes had 3,200 Haitians making t-shirts for it. Paying each of them two bucks a day more would cost it about $1.6 million a year. Hanesbrands Incorporated made $211 million on $4.3 billion in sales last year.

:: via Business Insider ::

Just in case you’ve been living under a tectonic plate, Haiti is probably the most fucked place on earth.

Ideas About Sex (From Countries W/out Hopelessly Provincial Ideas About Sex)

Taking your first steps. Riding a bike. Your first kiss. The first time you have sex. All standard rites of passage for anyone growing up in much of the world. But what if you never took your first step? What if you couldn’t ride a bike? What if the disability you were born with distanced you socially? What if there never was a first time?

Asta Philpot, 25, is a confident, extroverted person, similar to many other British men in their 20s. But he was born with arthogryposis, a condition that severely limits the movement in his limbs. Last year, he chose to lose his virginity in a licensed Spanish brothel. This year he took two other disabled men on a bus trip to the same brothel, filmed by BBC’s One Life. “When I was younger I had a friend and we always used to talk about relationships. He had muscular dystrophy and passed away without having a sexual experience. Why should people struggle for that experience?”, Asta says.

:: via the beeb ::

I support legalization and regulation of prostitution. I would argue that the current trafficking problem is a result of a black market that emerges as a result of illegalization. I definitely support this guy going to a prostitute and taking his friends, but what if it scales?

In the small town of Zeist, Holland a small squad of Dutch “nurses” is going above and beyond whatever you may think the term “physical care for the disabled” entails. According to an article in the 2 April edition of the Italian newspaper Corriere Della Sera (www.corrieredellasera.it) the alternative healthcare group “Sar di Zeist in Holland” is the first group of its kind in the world that tries to meet the intimate needs of disabled men and women. “Sar” is a Dutch term that describes Holland’s permissive culture in general, and this type of Dutch “health care” in particular.

But lest you think that this practice is a dressed up term for prostitution, then think again: The Sar di Zeist has been around since 1982 and averages about 2500 “consensual” sexual relations each year. This according to the group’s founder Rene’ Vercoutre – handicapped and confined to a wheelchair since the age of 15. According to a translated article on www.ufch.dk, Vercoutre — father of two and divorced – never considered sexual abstinence an option despite his disabilities. So he organized the Sar di Zeist to help others — male and female — with similar needs. The organization is run entirely by volunteers. The Corriere Della Sera quoted Vercoutre as saying, “…a typical “encounter” lasts about 90 minutes and costs about 85 euro…” A portion of that amount goes towards running the Sar’s “call center” and the rest goes towards expenses of the facilitator.

:: via Associated Content ::

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Here’s a quote from EscortsForTheDisabled.com

For many years, society and even doctors have tried to deny the sexuality of disabled persons, or to portray them as asexual. We at ESCORTSFORTHEDISABLED refute this, utterly. Everyone on this planet has a need — and the right! — to express their sensual selves. We celebrate sexuality in all of its myriad forms, and embrace them. In doing so, we are touched on a deeper, and ultimately, more profound level.

This struck a note with me. It’s obvious that the rights defined in the constitution are not the sum cannon of what people in a just society are entitled to. Given that, I’m interested in thinking about what rights haven’t been fully defined and maybe consensual sex is one of them.

The Founder/CEO of escortsforthedisable/d.com has severe Cerebral Palsy! This is our world too!

So if consenting sex is a right, and it scales does the government have an obligation to provide/facilitate it?

HOBART, September 30, 2005 (LifeSiteNews.com) – According to an apparently unembarrassed official of the Department of Health and Human Services in the Australian state of Tasmania, guidelines have been established that allow care givers to organise visits for disabled clients to Hobart’s local brothels. Disability Services state manager Michael Plaister said to The Mercury newspaper, “What we’ve got is a longstanding policy based around the principles of human rights that people with disabilities have the same rights as anyone else in the community and are entitled to be assisted to exercise those rights.”

Disability Services’ guidelines include a section developed in 2001, titled “Access to a Sex Worker.” It states, “Sex workers should be seen as one of a number of options to consider when supporting people with disabilities to make decisions about their sexual needs.” The report in The Mercury says that though the men usually pay for the services themselves, guidelines exist for social service funds to be made available should they be strapped for cash.

In Denmark, the government has arranged a more regimented system in which the social services pays for “sex workers” to service disabled men twice a month. The Danish guidelines state, “It could be of great importance that the carer speaks to the prostitute together with the person in their care, to help them express their wishes.”

:: via LifeSite::

AND if you’re a Deaf Lesbian, there is a website just for you http://www.deaflesbian.net/

I’d just like to close this blog post by reminding people that in our country we are busy debating if we should give out condoms in schools. Simultaneously, many people are baffled by our teen pregnancy rate. AND we have one of the highest infant mortality rates in the industrialized world.

Thinking about this a bit further:
-Given the current socioeconomic status of most prostitutes, I’m dubious that true consent in terms of prostitution actually exists.
-Over the years I’ve known 5 women who were “sex workers,” 4 of them were doing it to fund a coke habit. Were they being exploited? I say yes.
-Consensual Sex may already be covered in the constitution under the right to privacy. So this might not be an issue of defining new rights but actually making sure that current rights are actually implemented.

Guest Blogger: Devon Lake

So most of the GSF Board (Harmony, Vanessa, Eric and I) just met and wanted to send out an update of where things are with our second school, our plans for next year (including building our last classroom!) as well as ask for your support, if you are so inspired. (Your money goes a long way: for ex. $60 pays a teacher’s salary for a month, see below for more)

The Goma Student Fund (GSF):
For those of you who I haven’t shared this with before, GSF is an organization I started in 2002, after a trip to Goma as it was beginning to recover from a volcanic eruption. Add in 12 year civil war, aftermath of Rwandan refugee camps, and incredible poverty and you have thousands of kids orphaned or impoverished and needing education. NE Congo is still designated as a relief area, so very little development work is, or can, happen here. GSF is a small nonprofit, born primarily out of the interest and support of our friends and loved ones, that works with communities to start schools, both K-12 and vocational.
Read more about Goma and our work at: http://www.gomastudentfund.org/

GSF efforts this year:
With the first school running self-sufficiently at this point, our attention is on our second school in the refugee area of Mugunga. In its second year, this school gives educational opportunities and hope to a population that has been displaced for over a decade and whose needs are rarely addressed by aid organizations in Goma.

The next step for GSF is to improve the quality of education in this area to bring it up to the standards of schools in Goma. To date, the investments of friends and family have allowed us to build five classrooms and enroll 250 students. Each class is full beyond capacity, with children sharing notebooks and pens and sitting four to a desk. Even then, more students the school cannot accommodate line up at the windows to watch lessons.

Providing quality education in this refugee area demands greater financial support. Families are not able to pay enough in school fees to cover even the basic operational costs. Teachers must be paid to travel from Goma daily. There are greater infrastructural needs of the location, including the need for a water collection system and more-secure cement buildings, rather than wooden.

As a result, the GSF is shifting its approach from developing its first, self-sustaining school in Goma proper to committing to yearly financial support for the operations of this second school in Mugunga. We recognize that we have a unique role to play in helping this refugee community meet its needs, beyond those of immediate survival, by giving their children opportunities through education that will support the entire community in moving towards a new future.

How you can help:
Many other organizations and programs will not support development in a refugee area, so the vast majority of our funding comes from individual donors. GSF is a labor of love by the entirely volunteer staff and each of you is in some way personally connected to one of us. All funds donated will be directed 100% to the program. We are fortunate in that money goes very far in Goma.

To give you an idea:
$30 – Pairs of uniforms for five students
$60 – Teacher’s Salary for a month
$100 – One year’s tuition and supplies for two students
$300 – Furniture for an entire classroom

If you can help, please donate today; the needs of the Mugunga children are immediate, and it is such an easy thing to forget to do.

http://www.gomastudentfund.org/

Personal Thanks:
Many of you have donated in the past and I’m always reminded, when I sit down to do this yearly fundraising drive, of how much your words of encouragement, willingness to help or discuss, and overall vote of confidence through your donations keep me going when I’m far away from the kids and families over there that we are all working to help.

It was a conversation with a friend, this morning, that reminded me what a special opportunity this organization offers to me. For me, it is always easier to want to work with people and issues that are right in front of me. And, for now at least, I’m not willing to move longterm to Congo, or a similar place, because I miss the amazing community of friends and loved ones I have here. But I also can’t go through my days thinking I am only contributing to folks here in the US, which is why I’m grateful to have an easy pathway to reach out to folks a world away, and especially a part of the world where many cannot or choose not to work, to help them move themselves forward, by creating a new generation of literate, critical thinking, and empowered young people. Without a basic primary school education, they are unable to take advantage of so many other opportunities, from being able to read when to take their medication, to show up for a vaccination, or replace their water filter to voting in an election, reading a piece of news, managing their money, or reading a land deed.

Both parents and kids know it, and it’s what motivates parents to eat a meal only every other day to save the $1/month to send their kid to our school or kids to steal backpacks to try and get into the classroom. I wish you guys could meet them. No one I know who has gone to Goma, doesn’t plan to go back. But it does feel very far away from here, and I am so grateful for all of you who have made this organization something you care about. It started because of that care and wouldn’t exist any other way.

Thank you.
Devon

Revolutionary Iconography Gone Meta

It’s as if he’s saying “You want some of this?? Yeah I got it right here!n626258736_138493_784.jpg

I’m not a fan of che, he’s a stalinist from what I can tell. Plus, I’m going to side with all the other people tired of 1st year college students wearing revolutionary tshirts rather than actually being revolutionary. Furthermore, I don’t support killing people, ever. I’m more of an Zapatista Army of National Liberation man myself.

450px-mexicochisezln01.jpg

This sign reads, in Spanish: Top sign: “You are in Zapatista rebel territory. Here the people give the orders and the government obeys.” Bottom sign: “North Zone. Council of Good Government. Trafficking in weapons, planting of drugs, drug use, alcoholic beverages, and illegal sales of wood are strictly prohibited. No to the destruction of nature.” Federal Highway 307, Chiapas.

Yeah, that EZLN article on wikipedia is pretty good.

Pretty: New Song on Hang Drum (2005 "melog" scale)

The hang (or hang drum) was developed in 2000 in Bern, Switzerland by Felix Rohner and Sabina Schärer (PANArt Hangbau AG) and introduced at Musikmesse Frankfurt in 2001. Its name comes from the Berne dialect word for hand. The hang was the result of many years of research on the steelpan and the study of the diverse collection of instruments from around the world, such as gongs, gamelan, ghatam, drums, bells, etc. Udu-like sounds can be produced with the air resonance within the clamped shallow shells, with the notes sounding like bells or harmonically tuned steelpans.

The inner note on the bottom dome is the bass note, and when played in a dampened way allows change in pitch like a talking drum. Seven (in the bass version) or eight (treble version of the Hang) notes are tuned harmonically around a central deep note. The hemispheres are hardened by a process known as gas-nitriding.

Here’s another good one.

I found one on ebay for $250

::: via email {thanks Danny!!!} :::

Danny writes:

as for the hang drum, everyone is oh so sad on the internet because the swiss guys that made it have taken to only selling them to you in person if you trek to Switzerland to get one from them. they also, as they cannot keep up with demand, make very few. though this model is cute in that intimate “i-made-a-journey-to-get-this-extremely-rare-and-sexy-instrument” kind of way, it seems to have created some sense of elitism or an -ism akin to it.

as such, i feel obligated to tell you (and in doing so, hope that you will convey this to anyone that expresses to you interest in getting one) that there is a steel drum company that is looking into making a drum like this available to people who do not want to / cannot make the journey / cannot survive the waiting list. the company is at http://www.pantheonsteel.com and on the main page, visitors will find the following link: Interested in the HANG PAN OR HAND PAN?

clicking it will open an email to kyle@pantheonsteel.com

emailing them to express interest is encouraged (by me) for anyone who would like to further motivate this company to produce these.

just thought i would let you know =)